National Portal for Persons Living with Rare Diseases

New Delhi : The Department of Health and Family Welfare has launched a Digital Portal for Crowdfunding & Voluntary Donations for the treatment of patients of Rare Diseases in accordance with the mandate of the National Policy for Rare Diseases 2021. The Digital Portal may be accessed through https://rarediseases.nhp.gov.in/

The Department of Pharmaceuticals has initiated the implementation of Production Linked Incentive Scheme for Pharmaceuticals. The Scheme provides for financial incentives to manufacturers selected under the scheme for domestic manufacturing of various product categories, which also include Orphan drugs. The guidelines for the Scheme are available on the website of the Department of Pharmaceuticals under the tab ‘Schemes’.

The Minister of State (Health and Family Welfare), Dr Bharti Pravin Pawar stated this in a written reply in the Rajya Sabha here today.